Saturday 22 November 2014

This is the Best

Music keeps me afloat, just as much as my writing does. The right song can pump me up or mellow me out, and the right band can hold relevance forever. I like a little bit of everything, but especially the home-grown stuff including Billy Talent, LIGHTS, and more. Odds are I will never meet Billy Talent, but I will keep dreaming.

Last night, I saw one of my longtime favourites USS, or Ubiquitous Synergy Seeker. It's hard to put a name to their sound, but I've been to a show every year since 2009, and have never been disappointed.  The best part about them is not only their music, but also the kindness they show towards fans. Every time I go to a show, I've gotten a hug, or a chance to sing along. Nothing beats being remembered an recognized by a band that I love!



Tuesday 4 November 2014

Just like a Puzzle

I've mentioned my position with workstory.net, but I haven't really told you why I love it. As you know, or maybe not, I ask  friends and acquaintances to share stories about careers they love. It's really interesting, because in some cases now I understand what it means what my friend says I have to go to work; when previously I would not have known their extent of busyness. I see their passion, their drive, and see that the path is full of roadblocks and detours, just like mine

I've heard about the love of helping others, but also it's ups and downs. I've heard compassionate tales of firefighters in training being pushed to the brink, and hugging someone who has lost everything. Every time I hear these stories, they give me an opportunity to fuel my fire, and perfect my dream. When I work with information, it's like nothing else exists except what's in front of me. I snap every piece into place like a puzzle, and there is nothing more rewarding than seeing the finished picture. If I'm having this much fun with my first opportunity, then I know I'm the right place.


Karli

Friday 31 October 2014

Black Cat

A different take on Halloween…


Black Cat

Shrouded in darkness, covered by night
Two bright Amber eyes accented by moonlight

My existence brings fear every day of the year
Most prominent on Halloween Night
Truth be told, I am hungry and cold
Full of  only my own fright

Superstition tells of my wrath
Ill luck befalls any who cross the same path
The myth hangs over me like a"witch" from the gallows
How could any human believe in something so shallow

In every alley I sleep in, down every street that I roam
I search for a place I can finally call home
If you see me tonight, let me in
It's alright. I will gladly be your "treat" for life


Wednesday 29 October 2014

Tears of the Fallen

It is almost November, and I felt like sharing this. I wrote this because I was feeling frustrated last year about how war has been turned into a game, something to sell:

Tears of the Fallen

On the day of solemn remembrance
The rain fell on the window pane
As if to mirror the tears of comrades
Whose falling seems falling in vain

So the tears that fall fertilize,
With intent to strengthen peace
But instead a mockery of sweat and tears
Everything that the veterans despise

Those they passed the torch to
See the wars as a game
Bought in stores, so companies
Can reap financial gain

Today society's biggest fight
Is whether the poppy is red or white
No sweat, no tears, no pain or fears
No worry of making it to the golden years

The years are spent with gold and greed
Forgetting what we truly need
To honour those who fought for us
Expecting nothing in return
Only hoping sacrifice would help the world to turn

Vets' tears, our tears of regret
For what we seem so eager to forget

 
A poetic collaboration by Karli Steen & James Black
November 12, 2013

Monday 13 October 2014

Thankful

I try to be as thankful as I can everyday, and on this Thanksgiving there is lots that I am thankful for…

I am thankful for a supportive group of family and friends, that even when I am having my low days, still stand by me 

I am thankful for my good health, and the steps I have taken to keep it decent.

I am thankful for technology, because although in this day and age it holds a lot of negative aspects, it helps me achieve many things that I would not be able to otherwise

I am thankful for laughter, and the friends that make it effortless to do so

I am thankful to have known failure, because it has given me the strength to be better and push harder for success.

I am thankful for the helpers that go out of their way to make sure I'm well taken care of in spite of management being a joke

I am thankful for heartache, because when you close your heart to one, so many others open their hearts to you

I am thankful for the little black devil that is my kitten. He has been a constant in a time of change, and in many ways been the child I will never have

I am thankful for my resilience, perseverance… and I am thankful to be me


Karli 

A half asleep selfie… Before we both passed out

Thursday 4 September 2014

Finding Balance


I thought this week would be difficult for me, with a large portion of my friends returning to school, me being done, and feeling left behind in a way. I had several concerns about leaving school, which included the loss of a social life and also a routine. 

So far the concerns have all been for nothing. I've had something to do every day this week. I know it won't always be like this, but I've also gotten used to enjoying solitude. Sometimes, there's nothing better then curling up with my kitten to watch a movie, playing video games or just reading a book in my pajamas. I'm getting to enjoy things now, that school would've gotten in the way of before. I've started going swimming at the YMCA with a friend; and it has been really exhilarating because I've never really been able to get a lot of exercise in the typical sense. I'm even considering getting a membership, to stay relatively active.

The one frustrating thing about not being in school so far, is the job search. The biggest lie that universities tell you in the first year, is that their institution will be the best outlet for you to get the top job and the top dollar. I work with disability employment agency once a week to look for the best positions for my qualifications; and the truth is no matter how prestigious or acclaimed a university may be, if the  job market sucks, good luck…  So far, I'm having fun discovering that there are more things to balance than a school schedule and readings, and I look forward to ultimately finding balance within myself

Karli

Tuesday 2 September 2014

The EA Effect

I've needed a lot of help in my life, for many different reasons. I've dealt with many doctors, physiotherapists, occupational therapists, and lastly workers, but I have never really written about my early schooling experience with EAs. It takes someone really special to be an EA, because sometimes they're like a mom, teacher, and best friend all in one. For as long as I can remember, I was even more happy to receive praise from my EA, rather than a teacher, because they knew me more intricately than my Teachers did. They knew when I was having a bad day, when I was having a good day, and they cared
 
Tasks like using my walker when I was younger were never as daunting as they could've been, because I knew that if I performed well, I would be rewarded with a Five Alive at the end. They were the kind of people that would be the first to the side of the hospital bed, when they heard I was sick. When I didn't have my homework finished, they knew that it was something deeper than my own laziness. They knew the person I crushed on, before I ever told them.  I was happy in day to miss 20 minutes of class go to the bathroom, because I knew that in that bathroom I was learning more than a teacher could ever teach. The lessons were never the same; ranging from singing, dancing and even teacher impersonations. They knew things that even my parents didn't; and the first and only time I ever got significantly in trouble in grade school, was witnessed by one of my favorites… I wouldn't have it any other way.

I've heard many reasons as to why they should not be a part of the school system. For example, there is the argument that they interrupt with the way the teacher runs the classroom. This is the biggest load of crap that I've ever heard; if anything they made my time in the classroom easier, because my earliest days of school were written off by teachers as if I was the Ritalin child. The second argument I've heard is that the teacher should be able to manage their own dwelling,which includes all the existing students. While the majority of my teachers were concerned and somewhat involved in regards to my success, I do not think that I could do succeeded half as well  as I did without the assistance of EAs. Since leaving the public school system, I have had teachers revisit me in the present, and tell me how much having me in their classroom has taught them in regards to being the best they can be. I am flattered by the sentiment, however I realized that I never really properly thanked the people that have ultimately played a very significant role in my success.

So now I do thank you; for the laughter, the support, the scoldings, and being there through the tears.Thank you for being yourselves, and I hope you continue to help people the way you have me.

Karli

Saturday 9 August 2014

Stuck in the Moment

 I try my best to stay positive about my disability. However, you can easily find evidence within these blog posts, that it is not always easy to do so. I suppose everybody has their good and bad days, but sometimes for me there is a buildup when the bad days seem to come in quick succession, or the good days don't last long enough. Today was especially painstaking, because workers were consistently late, when I was waiting to go to the bathroom. It is in moments like these, that my disability becomes blatantly obvious, and no amount of positive thinking can deter it. I feel a giant surge of bitterness, that I cannot respond to simple and natural needs on my own, and I'm constantly relying on someone else for the most basic of things. When things like these happen, but it is so easy to forget that I am much more than the disability I have. I live with the condition, and the condition should not define me.

Sometimes it's hard to find yourself within a condition, because there are so many societal pressures and obvious flaws. It is so easy to say, "if I didn't have a disability, things would be different." Yes, they would be a great deal different, but I doubt the difference would be for the better. As hard as living with a disability can prove to be, my disability has given me many things that I don't think I would have otherwise. My disability has given me a great sense of gratitude for those who take care of me well. I have always had an overwhelming desire to succeed and conquer all obstacles, even if the odds were against me. My disability has shed some light on the importance of advocacy, but sometimes it makes me forget myself because I get too wrapped up in helping others and forget what I need. However, I need to remember that I have greatly succeeded, and conquered many obstacles, and met so many decent people along the way. I know 100% that today's slump will not be my last, but I thought I would take the time to say that today although I was stuck in a moment, I would like to thank those people who make a great deal of my moments positive ones. Your patience and understanding is always appreciated, although sometimes it might not be properly shown. Surrounded by people like you, I feel like I'm standing 10 feet tall.

Karli

Friday 8 August 2014

Selective Support


This letter was published in the July 26 edition of the London Free Press, after some built up frustration…

--------

While most of the support I receive is excellent, I’ve been having problems with some people who complain about every aspect of a support worker job.

Welcome to a job where you are paid decently to do everyday activities. This job doesn’t allow you to pick and choose what you wish to do. Your job encompasses everything from assisting with personal care to assisting with the cleaning and maintenance of household animals. Any allergies and other health concerns are noted and understood.

You simply don’t like dogs, cats, cooking or cleaning? We never wanted a lifestyle in which we constantly need to ask for help. Your job will never be thankless, unless you make it so yourself.

You took this job because you thought it would be easy? Life is never easy, and helping others takes a lot of emotional strength and compassion. Just because you help us, does not make you more superior, or give you the right to pass judgment on what is right or wrong in any aspect of our lives.

You took this job as a bridge into a nursing career? That does not make you a nurse yet. You will, without a doubt, be dealing with more graphic and gruesome things than dogs, cats, cooking and cleaning.

Your job is to help, not to hinder. Independent living does not mean selective oppression of human rights.

Karli Steen


Monday 21 July 2014

CatLog: Entry #1

The humanoid on wheels persists with shouts of "Tyrion!"I have yet to figure out the meaning of this; and also, the word "no". I am quite comfortable In this place, and whether the humanoid likes it or not, everything here is mine. I have quickly learned how to reach high places, that is the only way I get attention and called a "good kitty". The humanoid believes that I should be satisfied with "kitten kibble", but all the food is also mine. To the humanoid's great annoyance, I have learned how to get up on the table where the food is, and make that a common resting place. There is this thing known as a straw, and it is apparently used to suck up liquid substances; however, I believe that makes a rather better chew toy.

My new companion does not like the fact that my favourite hobby includes nighttime wrestling, it is evident that I must continue working on bending her to my will. Earlier today, I had thought that I was succeeding. She returned from the unknown with a contraption with fur on it that is not mine. It is referred to as the "feather stick", and when it is waived around I am helpless to its powers. I was in the midst of contemplating whether this thing may be a mind control device, when I found a place I thought I could take refuge… I was wrong! It took shape in the form of a cloth hut. When I entered, I thought I was safe from the humanoid's eyes, however the humanoid was able to lift up a piece of the cloth and still see me. The humanoid found a game in constantly lifting up and letting go of the cloth, even when I use my innocent eye tactics. Am I safe anywhere? That remains to be seen


Note: I have tried singing the song of my people to the humanoid, she tries to sing along, and sounds horrible while doing it…


SOS

Sunday 20 July 2014

Meet Tyrion!

I would like to introduce to everybody my new buddy Tyrion! I got him as a gift, and he is already a very welcome addition to my home! According to my cousin, who came to visit yesterday, he is smarter than the average cat. He can already achieve things that my cousin's cats were not doing until they were three months old. For example, he can already jump up on my lap to get attention and affection; which is a good thing because it's not like I can pick him up myself! His favourite pastimes include napping, chasing round objects, eating straws, and keeping me up for hours wrestling. I'm not going to lie, it's nice to have somebody around all the time again, I look forward to having the company during the epic battle that is the afterschool job search! I apologize in advance, because there will probably be several blogs dedicated to his cuteness, but I couldn't be happier!

Karli


Wednesday 25 June 2014

Go Forward

Yesterday was the 18th anniversary of my Nanny's death. It is usually custom for me to be sad and lamenting, but I did not have time for sadness yesterday. Thanks to my friend Kayla and her new puppy Cola, I was in good company. It was so good to have someone to talk to about anything and everything, and snuggling with a cute baby furball was a bonus.

I always enjoy talking with Kayla because she offers a different perspective being a student like me, but also a student juggling the demands of Type 1 Diabetes. Our conversation was interesting yesterday, because we were able to draw similarities  and contrasts between diabetes and aspects of 
living with a disability. Sometimes I feel bad, because I worry that I am asking ridiculously stupid question, but regardless it is a learning experience for the both of us. The funny thing about life is, that when you picture someone  inspiring, or someone that you look up to, you never picture yourself. Ever since meeting Kayla in college, she has been someone that I have silently looked up to. She inspired me to write my blog, as she maintains her own to do with daily life and diabetes.

My biggest concern yesterday, was that I may not have passed my summer course. This was not for a lack of attending the course, as I only ever missed one or two classes, but it was evident that the course was a struggle for everyone, and I wasn't sure how I would do. It was nice to have Kayla there, to sort of pull me back down to earth, and remind me of how much I've accomplished in spite of all my obvious obstacles.

As it turns out, I had no need to worry after all! I have successfully completed a BA in English! As hard as the road has been, and as much as I spent so much time missing my Nanny in all of these 18 years, I was happy yesterday to have somebody to remind me to keep going forward, and to never doubt myself! I know that if my Nanny were still here, she'd tell me to do the very same thing!

Karli





Wednesday 11 June 2014

Writing Rewind: My First Year at Fanshawe

I had intended for this article to end up in the Fanshawe College newspaper… But somehow it never ended up there. I recall being too busy to submit it… What a pity!

 The Way Things Roll

As a first-year student at Fanshawe College, I am amazed by the wonderful people and services found here. However, being a student who faces a life-long confrontation with cerebral palsy, I notice things the average student may not. 

I love to meet new people. I find, upon introducing myself, they tend to assume I am unintelligent. I know people fear what they do not understand; however, it is always more prudent to know someone before drawing such conclusions. Do not be afraid when you come across someone with a disability. We may do things different, appear different, and act different; but, never forget that age old saying, “don't judge a book by its cover.” Categories are simply limiting; life is rarely categorically simple. 
The truth is, even people with the most severe disabilities are able to communicate their intelligence and express their opinions. A little patience is all that is necessary to swim those depths with these people. You cannot deny it is nice when someone takes time out of their day to listen to what you have to say. These people are no different. Some people use communication boards, others use sign language. Disability or not, communication is always possible. If, for any reason, you still doubt our intelligence, look around, there are many of us here at Fanshawe. If we lacked intelligence, we would not be here. 

Among the things I have noticed is the difficulty in getting from here to there around the campus. There are several aspects I have noticed which contribute to this problem. 
The hallways of Fanshawe hallways are filled to the brim at the time I need them to be clear. It is no secret the hallways are so busy that extra minutes must be factored into the trek between classes. Typically, I add extra minutes on top of what you would add; but, there are still a few things that tend to slow me down. 

Groups of friends gather in the hallway while awaiting class. They are engrossed in their conversation and they fail to notice the spot which they have occupied is actually a thoroughfare. So you must be thinking; well, why don't you just say excuse me? That is the first thing out of my mouth; but, when I politely use the phrase, and then receive a look which suggests why the hell should I move for this alien, I wonder why am I being polite. 

I realize I must look like a short little alien attached to 300 pounds of metal. The truth is, I am a person too. I will always be as polite as I can, even if the favour is not returned. Now I ask you, after someone politely asks to pass, does moving out of the way have to include flashing a dirty and non-comprehensive look? 

Upon receiving this look I am inclined to barrel through. Those of you who think this is rude are in no position to judge, nor should you, lest ye be judged. For future reference, the next time you are standing in the hallway, try to leave a clear path for others. We are not as limber as you presume we should be. So… Get the hell out of the road – OR get run over! 

The next challenge of the day is the elevator. I often find myself evaluating which ones would take the least time to use. For example; I have figured out that the M elevator is much slower than the one in H. If I want to make it to a class in B on time, I do not waste my time looking for the meticulously camouflaged elevator situated at the opposing end to the entry of B building; I head straight to the one in T building. 

Although I have this down to a science, there is no guarantee it will save me any time. Some days when approaching an elevator, I find myself encircled by able-bodied people. 
I suppose to able-bodied people there is a disconnect, an ignorance or denial. I understand the convenience of taking the elevator. I have no other option, I have to take the elevator. When the elevator is full of people who are capable of using the stairs, and there is no room for a wheelchair, I am being denied the services which Fanshawe has put in place, as well as being late for a class. 

Such incidents have happened on several occasions. It is not funny to see a wheelchair stuck half-in, half-out of an elevator; some students think this is hilarious. While it is a common past-time to giggle and titter at situations which we think we will never have to encounter, I remind you of a term we `challenged` persons have for you, TABs! 

Loosely translated, TAB means Temporarily Able-Bodied persons. Your abilities are temporary: some more temporary than others. Think about it, we all end up disabled somewhere along the road of life. Car accidents, sports injuries, diseases and aging are but a few of the ways in which the playing field becomes level, for everybody. The world has a way of reminding us we are all vulnerable. 
To be honest, I would much rather spend my time climbing stairs. I, myself, would die for that chance. So the next time you feel like taking the elevator, be my guest, but make sure you are not denying the space to anyone who truly needs it. 

Finally, I arrive in class and park myself out of the way. As soon as I park, I turn into a magnet. Students and teachers seem to gravitate towards my chair, as if the whole universe spins around the centre of my chair. During lectures, teachers tend to move around the room, gradually reaching the spot in which I have parked. They use my chair as something to lean on, or just to hold on to. Students act similarly, touching my chair every time they walk past, or placing their feet on my foot rest if I sit close enough to them. 

In high school, I helped in a disabled classroom and they taught me something called "wheelchair etiquette". In short, it is not polite to lean on a person's wheelchair, or even touch it without any given consent. The chair is my personal space. WARNING, I may bite; remember, you are scared of me. 
I dislike that I am attached to a 300 pound piece of metal; but the fact is, it is a part of me. Touching someone's wheelchair without permission, is the equivalent of stepping inside an individual’s "personal bubble". After my personal bubble had been broken several times at Fanshawe, I began to ask myself why. Why are people so fascinated with the feeling of 300 pounds of scrap metal? 
I would like people to know that I much prefer a smile when acknowledging I am in a room. It is not bad to have your presence acknowledged, but there are better ways to do so than awkward physical contact. 

I would like to thank the people who help me, in big and little ways: The students who kindly open the door for me, or opt to take the stairs when they see I need the elevator: My teachers who encouraged me to write this article: My fellow wheel-bound aliens. Most especially, I need to thank the two ladies who helped me out of a snow-bank last week. I realize my college life, without the help of people who notice the small things, would be a lot more difficult. 

Finally, I'd like to thank you, the reader for taking the time to read this article. I hope it sheds a little light on the shadows which you pass in the hallway every day. We all have struggles in front of us, that`s the way we learn. I will continually be confronted with struggles as I go along, but that's just the way things roll.

Karli

Tuesday 10 June 2014

The House of Blue

In my final years of high school, principal Paul McKenzie drove home the importance of community. I remember, that each student got a coloured shirt that corresponded with the alphabetical order of their last names. I remember a speech, emphasizing that we were part of a larger whole, and our goal was to make our school and community proud. We were a family.

I did my part as best I could, while I was a member of PCI. I was a good student, who got decent grades, and a strong advocate in the form of disability. I remember when I got a ramp for the courtyard, so that students in wheelchairs could also access the area. I felt a great sense of pride, not only knowing that I had achieved something for myself, but also for many students after me. When I graduated Parkside, I thought that I had done all I could for my former school. I climbed the ladder in the stages of life.

However, though I  had done my part, my family stayed with me. Every step of the way, I have had continuous support from my old high school teachers. Whether it be an introductotion to Starbucks, (thank you Mr. Lukings), baked good deliveries, coffee dates, early graduation dinners, and general inquiries about my well-being, it has all played a part in my success. When Mr. McKenzie first stressed the importance of the community, I had no idea that I would still be feeling the effects, and seeing the importance today. I have never been so honoured and glad to call myself a part of the House of Blue.

Karli

Sunday 8 June 2014

Escape

I've spent most of today re-reading Game of Thrones. Ever since I can remember, my favourite genre of reading has been fantasy. I think it's because when I was younger, I felt so different, and it was a welcome escape to get lost in the pages of books like Harry Potter, in a world outside my own. After reading Harry Potter many times over, I always found myself constantly asking the same question: "Why are there no disabled characters?" At first approach to this question, I forced myself to swallow the idea "magic heals all". However, that doesn't sit well with me anymore, so I have resolved to write JK Rowling and ask myself. It may be a long shot, but worth a try!

Game of Thrones is a different story. I love the complexity of the plot and characters. I love that the disabled/different people are still prominent figures. Bran and Tyrion are my absolute favourite characters, because in spite of their "flaws" they find ways to rise above them. Though it is fantasy, I can relate to their drive. When I turn the pages, I feel like I'm greeting friends. I feel like I don't have to go too far outside of myself to escape…

Karli

Saturday 7 June 2014

Actions Speak Louder than Words

My last post included a brief history of some words pertaining to disability. I gave the earlier periods some credit where due because they did not choose to insult people with words, they were merely looking for something to describe what they were seeing and discovering. I also express my dismay, at the fact that in some histories the word had progressed from something simple to something complicated and derogatory.

Today while going to, and while at the mall, I witnessed some behaviors that spoke louder than any history of a word. The first instance was when I was on the bus. First I had dropped my phone, and somebody was kind enough to let me know  that I had dropped it and picked it up for me. So I assumed it would be a good day. However, as soon as the bus reached the stop, the very same person that seemed eager to help me pick up a phone was eager to get out first. The bus driver had lowered the ramp in an attempt to get me off the bus first; and in spite of this every passenger pushed out before he even had the chance to unbuckle me, even with the ramp down as a clear indication of his intent. The bus driver apologized to me, and I said not to worry because it happened more frequently than he knew.

Just when the day appeared  to be redeeming itself; with polite New York Fries cooks, and excellent service at Cole's bookstore, it went sour once more. As I was weaving my way through the food court to try and find a table, I could see children staring, and parents catching them and pulling them away, telling them that it wasn't polite to stare. I even saw boyfriends pulling their girlfriends away and pointing, when they saw that I was coming in their general direction. I understand that when they do this, they are only trying to stay out of the way, but the pointing suddenly makes it so obvious that I am the only moving metal object in the room.

As for the children, I do not mind when they stare because I know they are just noticing the difference. If anything I wish that with the stare came a question, because I know children are curious and only seek to understand what they are seeing, much like the early societies within the English language. The parents could learn something from their children, as the children have a curiosity and genuine interest that their parents seem to lack. I am unsure of what adults think of when they look at me, and whether they believe any of the definitions of the words that I have defined in my last post, but one thing is for sure, their actions seem to indicate that some definitions are deep-rooted, and Are not going away anytime soon.

As much as I am bothered by encounters like this, as frequent as they seem sometimes, I realized that in spite of all of these different definitions and perceptions of disability, I am greater than each and everyone of them. Yes, I may have the legs of a cripple, but without proper use of them I have still been carried through four years of university, ridden a skidoo and the motorcycle, and much more. Yes, some people have slower of brain function than the average person, but I've seen many of those fee for that fit that definition, and still found that they have the same needs as the average person, and only a different way of communicating. There is nothing more rewarding than figuring out the way a person communicates, because then you realize that no matter how they function, they still have a valuable thing to say. Sometimes in this blog, it may seem like I'm getting really frustrated with society, and while l some cases that may be true, the only reason I share these things, is so that I can educate my friends and family, and others I care about. I only want to educate, and shed some light on my perspective, so that your actions too can speak louder than all the old and outdated definitions in the dictionary.

Karli

Tuesday 3 June 2014

Sticks & Stones Haven't Reached my Bones, but Names have Historically Hurt Me

I've been recently working on this etymology assignment to trace the history of a group of five words. So  I chose to go down the route of disability. I thought the endeavor would be interesting, and it is. However, at the same time it is very frustrating. At first with words like cripple, it was easy to understand why they needed a word to describe differences within the body in the early stages of the English language. Even still, there were underlying messages about how being a cripple was negative, and undesirable. The word dwarf is meant to describe a person small in stature, and also small plants and animals. It undergoes similar negative connotations, in the sense that a Dwarf as a person is seen to be naturally smaller, and historically less significant; even in the fantasy media depictions, dwarves are meant to hide away in the mountains, well those that look more able are welcome into the light. While I do not live in the time in which these words are created, to properly understand the full reasoning behind their context, language has also done a sort of reversal.

This reversal has both are positive and negative effect. For example, the word fool went from encompassing madness, and an unwise or stupid person, to simply being  (according to the OED) a term of playful endearment, among its other meanings. The negative effect comes in the form of the word retardation. Retardation in it earliest forms, simply meant the slowing down of an object. Scientifically, and embodied a slow lapse in time, whereas musically it involves taking note downs one step lower. Only in modern-day medical and educational forms, has it adapted to mean a person's less than average mental state. I'm sure that the deciding linguists or early society meant well, but this also raises the question of who decides what is average? maybe there can be more than one average? Why does there seem to be an innate need for a lesser to exist, and be defined by word or phrase? The word retarded/ retardation, has gotten even worse as it is slung around as simply and freely as the word gay. After spending nearly 6 weeks examining the English language, and seeing its early beauty, sometimes I can't help but fear for the future.

Karli

Saturday 31 May 2014

The Little Things

In spite of the fact that I'm really enjoying my summer course, six weeks of grilling work wears you down after a while… I had it all planned out, how I was going to stick to a strict study plan this morning… until I looked outside. I decided to get out and do something, and resume this study plan when I got back. So I headed to the mall, where I ran into my friend Frank. I really don't know how to describe Frank to other people, except to take the happiest and most spirited person you know, and times them by 10,000. A hug, some selfies, and the, promise of a Starbucks date in the near future, was all it took to make my day. 

I also had to make my regular mall stop to Starbucks, which in the scheme of things, isn't as cool as Frank, and the concept of human contact. However, it was nice to sit outside on the patio, and feel the sun and the wind on my skin; sipping my favorite latte, while apparently helping Oprah Winfrey fund her all-girls school in Africa. Although education is important, I feel like it's important to find a balance. Whether you're pushing yourself through four years of university, or just finishing your last credit in a condensed six weeks, you deserve a break at some point, to stop and appreciate the little things…

Karli



Wednesday 28 May 2014

An Alternate Reaction

Sometimes, I get really frustrated, because people that are well aware of the lifestyle I have to live insist on putting their two cents in about something that they know I cannot control… The latest concern was that I do not drink enough. It was particularly frustrating to hear, because the person who made the statement should know that not only am I  busy with school, but I only get help at certain times of the day. Sometimes when I know I have a large gap between, I will limit my liquid intake in order to be able to wait comfortably. 

My original reaction to this issue, was to express my wish for people to imagine walking in my shoes. However, upon cooling down, I realize how many people help to outweigh this one situation. I have many friends and family members who are willing to help make sure that I have a good night out when my stresses are building up. They make sure I have a cab home, and a safe way into bed. Those same people, often know my stresses before I do myself, and are there when the weight gets too heavy, to hold my hand or give me a hug when I need it. They may not fully understand the things I have to deal with or handle on a day-to-day basis, but they should make it easier. So instead of getting angry at the one person that doesn't understand, I thank all the ones that put in a valiant effort.

Karli


Friday 23 May 2014

In This Week's Issue of Trivial News…


I've had some really rewarding conversation this week, on varying subjects. On Tuesday, I met up with my friend Bilal and I shared with him my idea of writing a guidebook for the newly disabled; not necessarily telling them how to live their lives, but providing prospectives for the different situations that may arise. It was nice to get some positive feedback, and hear that my idea is not a crazy one. I have an overall love for raising awareness, that I hope to use and perfect in career.

Just a day later I was forced to think outside the box, in a simple conversation with my friend Nicole. We were talking about how our friend James (who was also with us) had come across a man on the street, who was resourceful enough my to feign distress to attract people's attention and ask for change.  I chimed in that I would not be comfortable giving somebody change, and if I had to give them anything, I would prefer to buy them lunch. My reasoning behind this was that I would not feel comfortable knowing that I could  be potentially responsible for someone doing harm to themselves by allowing them to have the money for drugs or another harmful substance.  The conversation pretty much ended, with the idea that there are different ways to look at such a situation. The ending was much more eloquent, but I cannot do it such justice in this blog. 
 
It may seem like I'm  rambling on, but at the tail end of this week, I have seen so much news on the Kardashian wedding approaching, and what Tupac's last words were to a cop on the scene of his 1996 murder. After the two very rewarding and enlightening conversations I had this week, this is a very disheartening fact. It seems that society is so ready to swallow trivial information, and remains in denial about many serious issues that deserve society's full attention.

Karli

Monday 19 May 2014

Just Roll with it!

I haven't been keeping up with this blog as much as I would like to. The truth is, the first week of summer threw me a sort of curveball. Around the time everybody was getting the grades back, and announcing that they would successfully graduate from Western in June, or even just basically a very successful year, I found out that I failed a course. At first, I was really fearful and ashamed, because I thought my parents were really excited about the fact that I was supposed to be graduating in June. I myself did not panic about the failure, because I knew that in regards to this year I bit off way more than I could chew, and I knew what I had to do to amend the situation.  It turned out that I had nothing to be worried about, because in reality it was only one course, and the disappointment I thought my parents would feel was just something I had imagined. It worked out for the better, because due to the nature of their work, my parents would have had a hard time getting time off for the June graduation anyway.

The first week of summer for me, highlighted that sometimes although there are setbacks, the only thing left to do is  "roll with it". The thing  I was looking forward to most this summer, was the fact that for the first time in three years I would not have to take a summer course, and evidently that has changed. However, I know it's for the better, because I am truly enjoying the course, and doing better than I would be if I was juggling it as well as three other courses. The summer that I feared was going down the drain just as soon as it started, has truly been a liberating one. Although I have class, I have also been able to arrange baking days, lunch dates, drinks, and even getting my nose pieced with some good friends! I find that there is too much of an emphasis on what other people think, when it comes to our lives… So from now on, I'm just going to roll with it,


Karli


Monday 28 April 2014

The Size of Shame

In the past several times that I've been shopping, I usually visited my favourite stores without much question. I get very excited when my favourite brands decide to start carrying plus sizes. However, this recently changed as I was shopping in Maurice's, and I discovered that there was a dress in the smaller sizes, and they had the same style in plus size. At first I was eager to buy the dress in my corresponding size, but the sales representative informed me of a $12 difference. And if I really like something, I buy it without noticing the price difference, but I got to thinking that this difference meant something greater. For the greater parts of my life, I have felt very self-conscious about my looks and my body, because quite frankly I was not "blessed" with my typical family genes. When I lived with my mom, I was constantly put on diets, for "health" purposes. I have always known that I was going to be somewhat of a bigger person, because I do not get as much exercise as the average person. The thing I have a problem with today, is that in the last 5 to 10 years, I have gone from being a large to a 3X in some cases. In spite of my obvious lack of exercise, I do not physically believe my body has altered that drastically. In the quite evident reduction of sizing, and the increase in clothing prices, there lies shaming. If you don't want to pay the extra $10 for a bigger size, then you better get yourself to a gym, in order to fit in a "normal" size. I agree that it is important to take care of yourself. I do believe the concept of "big is beautiful" to a certain extent, but not to  the extent of a person outright neglecting their health. The main concern for companies, it seems, is not the notion of health, or the promotion of higher self-esteem, but rather the promotion of bigger profits.

Saturday 12 April 2014

The Regis Article: Finding A Hero


Growing up with a disability was hard for me to do. Having idols like the Spice Girls and Barbie, only lasted so long because eventually I took the difference of working legs, and a slim figure to heart. Even when my grandma found me a Barbie with a wheelchair as an accessory, I knew that Barbie would never truly have to face the ups and downs that come with a disability.

I knew that other people faced
similar situations as myself. However, they were all men. Although when I was younger I was a huge fan of Terry Fox, and Rick Hansen, I also knew that none of the men ever faced anything remotely close to what I was dealing with. Sure, they had obstacles as I did, and they took them head on as I have learned to do today, but they never faced theirs as a young girl.

I wish that when I was younger, I had the guidance, or at least knew of someone who was in a similar situation as I was. Growing up the only thing I felt I could truly relate to was quite literally the Transformers series. There was nothing on the TV that ever told me a different body was beautiful. No commercials with even a man or a woman living life in a wheelchair. TV presented people in wheelchairs as the mad scientist figure, like the scientist in Tim Burton's Nightmare Before Christmas, or a headmaster in a school for super-powered mutants, like Charles Xavier in the X-Men series. Although I enjoyed both, they still paint a disability as encompassing abnormality, and as a whole, something feared and undesirable.

With the birth of reality television, I believe we have reached a new extreme. Instead of highlighting the undesirable aspects of an issue, I believe that reality TV over glamorizes simple things. Don't get me wrong, it is good that disabilities and other issues are being showcased on TV, but when it comes to reality TV I feel it is the wrong way to approach them. For example, there is this show on television called Push Girls, which documents supermodels that have suffered “freak accidents that have left them paralyzed. While I do have some sympathy, for what they are newly facing, it is not a fair judgment of what living with a disability entails. For one thing, they will never have to fully deal with body image, because they are still left with their model bodies they had before their accidents. They will never face the problem of overpriced necessities, because their TV show and modeling careers cover a substantially larger amount of the cost in comparison to the average person living with a disability. They will likely never face the problem of their needs not being met because of their State’s inability to access or provide the materials that may meet such needs.


Because of this recent change in the representation of disability, I fear for those who now grow up dealing with the same thing that I once did. Instead of having next to no one to look up to, youth of today will now have many different people, and with that many different perceptions of the way their life should be lived. While that could be positive to some degree, it could also have a negative effect. The media today is so much more influential than when I grew up, and because the media world is expanding, I believe that there is a big risk for the youth of today to lose sight of themselves. Being constantly bombarded from every angle with ideas of what is normal, could potentially cause an identity crisis between who we are and who the media says we should be.

Having a disability myself always raised my curiosity as to how other people of the world managed in the same situation as I was, and how the knowledge of disability, had changed over the course of history. The truth is, with the invention of reality TV, the true, reality of disability will never be fully understood, and fewer people will raise questions such as, "do other countries have the necessary resources to provide for people living with disability. They may never know to question policies such as China's one child policy, which not only eliminates the female population, but also the disabled. Disability is more than triumph over "tragedy".

If there's anything that I have learned from growing up with a disability, it is the fact that you can live without a hero. Surround yourself with people in similar situations of yourself, but do not let their actions wholeheartedly influence your own. Surround yourself with others in different situations, and share many perspectives, but do not become overly dependent on the affirmation of others. Celebrate what you've become on your own accord. Be thankful for the family and friends that have supported you throughout life's experiences. If you seek beauty, look deeper than what is reflected in the mirror and in the media. If you seek a hero, look no further than within yourself.


Photo: Come out of my exam, to find out I'm published!!! Get your copy of The Regis today!
 

Monday 7 April 2014

The Benefit of Woman's Studies

Last year, I had a terrible experience in a women's studies course that I took, because the teacher was convinced that everything was a man's fault. Though we continue to, and have lived in a patriarchal society for a long time, it is no longer as simple as that.  This year the experience was made up for a great deal, when I took The History of Sexuality, taught by Monda Halpern. Though we did discuss women's oppression throughout history, we discussed a lot more as well. To put all that was discussed in one blog, would take me too long, but what I found most inspiring about the course was that no matter what issue we touched upon, there was always a suggestion as to how we can improve  upon these issues in the future, and a discussion as to how all of these issues were affecting present-day. I was made aware of many different situations such as the struggles of the transgender community, and the controversial topic of FGM. The class taught me how to analyze the past and put it towards a better future. I am no longer afraid to analyze myself, to figure out the things I want and need to become a successful and empowered woman. Although he touched upon many issues in the course, there are still some issues I found to do with my own life, and I look forward to the adventure of taking what I have learned and putting it to use on my own to help myself reach a better understanding of who I am. I have heard in the past that people fear taking women's studies courses, because they are afraid the teacher will be a sort of Femi-Nazi, but if there is anything that I learned in this course, it is that education is one of the strongest combatants against ignorance.


Karli



Thursday 3 April 2014

Keeping the Faith

If my time at Kings has taught me anything,  it is to be open-minded to all aspects of life. Throughout my life, I have met friends with many different religious backgrounds. Some of my most interesting conversations have comes from discussing beliefs, and what started a certain belief. I may not believe in a certain aspect a friend is sharing with me, but I would never outright say that my belief is somehow more valid than theirs. Today I agreed to do a survey, that somebody asked me to do at the Kings crosswalk. I assumed it was for a thesis, or a collection of data for a final project, so I agreed. I was the questions begin, they asked about my religious beliefs, and I answered truthfully that I wasn't really sure where I stood and a lot of matters. They seemed accepting of this answer, until they handed me a phamplet, which contained Bible verses in which they said I would be saved. They said they would pray for me, because I still had to realize that God was the only way. If I continued to live the misguided life, I would surely go to hell. I respect those who have the meaning in their lives that helps them positively move forward, but I do not consider the experience I had today positive. It's okay to not know what you believe, but it is not okay to put one belief above all others. If I did that, I would miss out on the most deep conversations, with some of my devout Christian friends. I would not care to wish my Muslim friends happy Ramadan and happy Eid. Even just by attending Kings, I have discovered that the world has wonderful people in it, and the world should be open to many different perspectives. Regardless of what we do or do not follow, we are all only here for a short time, so if anything, we should have faith in each other.

Karli



My friend Matthew, who I have some of my most deep and rewarding conversations with!

Thursday 27 March 2014

Do What You Want To

Sometimes in school, I find that I spend a lot of time focused on I should be doing… Instead of what I want to be. However, my English degree will help eventually guide me into the field of journalism, so no matter how tired I get over Shakespeare and other such writers, I know I am doing the right thing.Today I met with John Davidson founder of Jesse's Journey and father to Jesse Davidson. It was an honour to meet him again, as I had met him once with Jesse when I was six years old. I remember the story well, he was promoting Jesse's Journey in Spring Bank Park and my mom had brought my sister and I to see. We went up to see them and he asked what my name was. instead of Karli, he assumed I said Harley, and he cracked a joke about the fact that if I married his son my name would be Harley Davidson. The man I met today was just as friendly and charismatic. Since the passing of Jesse in 2009, John has continued to speak, but in a different sense. He gives speeches to important figures including businessmen and otherwise in his talks, he includes the fact that we often mistake of our goals for our dreams, we get so caught up in our careers and what we think we should be doing, that we never take the time to realize what we've always wanted to do. He expressed the importance of traveling when we feel the need to, and even revisiting an old childhood hobby, or trying to do the one that we told ourselves we couldn't do. I've been lucky enough to do several of the things I thought I couldn't, like going to University, something as simple as riding a skidoo, riding a Harley-Davidson and publishing small pieces of work. We discussed how in the field of journalism it is important to get a lot of practice in many sectors of the field, but it is also important to become an expert in something. For myself I hope it allows me to become an expert on spreading the word about disability, and bringing to light isuses that are usually swept under the rug, because celebrity news takes a forefront. I have already experienced positive feedback in the form of this blog, and small editorial piece published in the London Free Press. I only hope that I continue to feel positive force in my life, because I know I will be happy as long as I am able to freely express myself in writing, and in doing so giving others a new perspective.

Karli

Wednesday 12 March 2014

10 Things I've Learned from King's

1. The most valuable lessons don't always come from $7000 lectures

Sure, I've had great profs, and read brilliant pieces of literature, but the lessons that have stayed better than any, have come from the people I've met.

2. It's ok to ask for help

In real life or school, don't assume you're the only one going through something, because you're not, and there's always someone willing to help.

3. Finish things early (when possible)

It alleviates stress in any circumstance, and when you're not cramming, you do a better job, and have more time to do what you love

4. Accept rejection with grace

There are many times we get rejected in in life, and if we reacted in anger, and took it personally everytime, our self esteem would go up in flames. Rejection often opens doors to better opportunities

4. Do things for you, not others

Never do things on the grounds that it's what your family and friends expect of you. Do them because you want to

5. Get out of your comfort zone

Do something or go somewhere you normally wouldn't. It could be fun, and teach you something new about yourself!

6. Say something

If you feel something could be improved upon, use your voice and say so. Chances are your opinion is shared, but others just wait for someone else to make the move

7. Slow down

We should be in no hurry to get anywhere. If you need to take summer school to lighten next year's load, do it. If you need to take a year off, do that too!

8. Keep an open mind

Just because you don't share the same opinion or values as someone, doesn't mean their opinion is not worth listening to. You can whine a lot when you tune in to other stations once in a while

9. The friends you start with, aren't always the ones you finish with

It's always hard to drift apart from someone you were once close to. Sometimes you'll find that you're not on the same page anymore, and that's okay because in truth, nothing lasts forever, no matter how good you thought it was

10. Be thankful

Not everybody has the opportunity to go to university, or a college for further education. For myself, I am the first person in the entirety of my family (except those who married in), to go to university. Though sometimes I found it to be stressful, it's an experience that I wouldn't change for the world!


Karli



Monday 10 March 2014

Top 10 Pet Peeves of Having Workes

Don't get me wrong, I appreciate every bit of  I can get, but sometimes these things need to be written down…

1. When I get a cheery morning person at 6 AM
I know I have to get up, but let me do it at my own pace… I don't need a Mary Poppins sing-along at 6 AM

2. The never ending game of 20 questions
I realize you need to ask me what I want, but try putting general conversation in between your questions…

3. When they come in chewing gum like obnoxious cows 
Everybody needs to freshen their breath, but when it's the only thing I hear and I can barely hear your voice, then there is a problem

4 When 10 minutes of short booking time is taken up by the sign-in/out process.
I know you'd like to get paid for mileage, but I also have to Pee

5 When they want to talk… And I don't
What did you do today? Work. How was school today? Fine. What about that goldfish that died when you were eight?…

6 When they relate you to another disabled person they know
Your legs shake, just like my crippled uncle Bob's! That's great, but I'm not your crippled uncle Bob…

7. When they attempt to give me life advice, at random
My cat died yesterday,  and if it taught me anything… hug your absent mother, and treat that guy who broke your heart to lunch!

8. When they talk about that job/life they wish they had
I want to win the lottery too, and I'm sorry that wiping asses is not what you hoped, but you won't escape it in nursing either…

9. When they leave things I need in able-bodied places
That's okay I didn't really need the salt anyway

10. When they leave things lying around
Just go ahead and run over your shoes that I left in the middle of the hallway, It doesn't matter if you could get potentially stuck in manual

Thursday 27 February 2014

A Rough Winter

I posted on here before about how difficult it is to get around during the winter time. For 3 months, or sometimes more, I am stuck within my house or school setting. It's frustrating, because sometimes no matter what I do to prepare, the weather seems to just hang on for dear life. It's safe to say that the winter we've had this here has overstayed its welcome. I usually don't like to share the poetry that I have written, but during the winter wrote a piece encapsulating the feelings that winter sometimes causes me. So here it is:

Silence

Darkness falls, a city sleeps
Wide awake, my mind, it shrieks
Seeking escape from a frozen cage
That seems an eternal ice age

Rain has fallen, turned to ice
Now, mind and body pay the price
Prematurely plagued by "disease"
No match against this deep-freeze

A simple task becomes a chore
Daily life, an all-out war
Snow, not Earth's blanket, beautiful and bold
But rather my straight-jacket, ensnaring and cold

Isolation is my enemy
Socialization a scarce commodity
Hatred burns, as my heart yearns for sun
Release me! Icy hell, be done

Sleep, like spring so far away
My frozen being shan't thaw today
Winter, cease your grip of violence
Mind, regain some peaceful silence

I wrote this at beginning of December, when knew it was going to get pretty bad… But I know you can see it still works very well for the current weather we are having

Karli

Saturday 22 February 2014

Surprise!!

 Tonight we celebrated my great grandma's 90th birthday at the Mandarin! It was great to see so many family members in one room, to celebrate one of the strongest people in our family! For a little while, my great grandma thought that everyone had forgotten her birthday, and we were able to surprise her by gathering altogether just for her! My Nan has brought so much joy to my life, from when I was little and my fascination with the English accent, to my everlasting love of  her stories. Tonight, I pretty much saw her story, in one room she came to Canada from England to start a life, and from that began the birth and expansion of my family. At 90 years old, she is one of the most caring, compassionate, and witty individuals that I know. If tonight has taught me anything, it is that you should always make time to tell someone you love them, because you never know when the opportunity to do that will cease. What I do know, is how lucky my family and I are to have someone like my Nan. I'll be lucky if I grow to be even half the person she is!

Thursday 20 February 2014

Reflection Week

Usually at this time of year, I get really frustrated when the majority of Facebook brags about their vacation destinations. Quite honestly I've been drowning myself in work, because I've had nothing better to do. As much as it sucks now, when the vacation goers are cramming, I'll kick back and laugh. This week has been an interesting week for me, because I've done a lot of reflecting. I wrote an article for the March issue of the school paper. Writing the paper was kind of liberating, because it reminded me of my strength as a child. I won't explain the article as a whole, but I will just explain that it was about growing up with out any sort of role model in this same situation as I was. I find that sometimes when you grow up, you forget the lessons you learned as you were little. Writing this article has allowed me to revisit the fact, that though there is support in many places, you can't always rely on the same people all the time. Sometimes you have to find happiness in yourself.

Karli

Thursday 13 February 2014

Be a Good Sport

Sometimes, the Olympics is a hit and miss for me. In the previous Olympics  I got emotionally invested in some of the stories, and I liked the fact that people like Rick Hansen would take his part in giving us the background of some of our finest athletes. I don't doubt that the athletes showcased within the Olympics are very skilled and kindhearted people, but I just wish that we saw more of the Paralympics. Growing up, I was never into sports, because I was under the impression that because I had cerebral palsy I could not participate in them. Every time I was sad down in front of the TV screen, and I heard the sounds of a  game, I never saw anyone that I could relate to. Of course I knew who the great were like Wayne Gretzky and Ty Domi, and I had even met them in my youth, but I always knew I was different from the sports stars I saw on TV. Though the coverage of the Paralympics seems to be improving this year with a reported 151 hours of coverage, I believe that it deserves full coverage. The Olympics tends to send the message that you can achieve anything you dream of, if you only work hard enough. I think that the disabled community children or otherwise, could use more of the uplifting effect of that message as well, and see it though a lense they can relate to, and people they can identify with. I can honestly say that if I had seen more paralympic sports as a child, and even now I wouldn't  be so impartial to sports. Disabled youth of today need to see that anything  is possible, no matter what your situation is, that you don't necessarily need to stand on a podium to make your country proud.