The Christmas Season on Wheels

I have been off school since December 9, and truthfully I haven't known what to do with myself. I finished Christmas shopping on the 11th, which felt relieving because shopping proves to be more difficult on wheels. It's frustrating because every shopper wants to reach the top item on their list before you do. Luckily, I had decided to go earlier in the morning and hopefully beat the rush; which I did, but in the ends It felt like that was stuck in the worst rush-hour possible. Usually people can mingle within one another when they are shopping, but I often feel like I am the giant elephant in the room that nobody wants to approach and everyone wants to avoid. Even taking the bus can be frustrating because as the Christmas season continues, it seems to get fuller and more cramped. However, I survived and all my Christmas shopping got completed. I consider myself lucky that I have been able to get out as much as I have so far, because usually the winter turns me into a hermit. Typically the snow causes me to become secluded to my house, And if I decide to brave the weather I often get stuck or end up feeling really cold by the end of the day. The weather might be nice right now, but I can't shake the feeling that it will come back to haunt me later. When the weather is not wheelchair friendly, I often play video games or read on my Kindle, but this year I have a new gadget to keep me company when the weather gets rough. I now have an iPad, and I am absolutely in love with it. I love getting new technology because I feel it unites me with my inner robot, being attached to 300 pounds of metal already it is not hard for me to feel like somewhat of a transformer. Now, with the iPad I feel like I have the whole world at the palm of my hands. All I need is to somehow connect it to my chair, and maybe I could become at least half as cool as Stephen Hawking, and maybe one day at least half as smart. I find that it is the Writer's dream, because it has speech to text, Which allows me to produce this blog post in half the time I normally would. Aside from the iPad uniting me with my inner robot, I have enjoyed my break so far because I have had the chance to visit with a few friends, and see The Hobbitt with my dad. It's funny, because when you are busy with school you often forget that you need to do little things to destress yourself, like reconnecting with the people that matter, friends and family. I wish all my readers the happiest of holidays and a happy new year.

Karli

Everybody's got a Story

A year ago on November 8th I started this blog. I started it to get practice writing, and the topics widely varied. They are not always 100% professional, but they highlight my values and concerns, my good days, and bad-- they highlight what makes me! It was fitting that I met Luca Lazylegz Patuelli for the 2nd time on my blog anniversary. He brought his dance crew, and they shared their passion, and the stories that made them. I always find him so inspiring, and I realized that though I do not dance, or train myself vigorously to walk, I experience the same passion for writing. The power that my legs lack, is compensated for in writing. I received many messages today that my blogs were inspiring, and that means more than you will ever know! Upon reflection, I realized that I would not have such stories to share without having met the people I have. So on this blog anniversary, I would like to thank everyone for being apart of my story, and allowing me to be a part of theirs!

Karli

The Lucky One

I remember telling my sister as a kid all the things I would do if Cerebral Palsy was cured. I would run, skip, jump, dance with the boy who said no before, and my biggest wish was to do Michael Jackson "Thriller" dance. I've never thought my life was that bad being glued by gravity to a chair, but sometimes, especially as a kid, it's hard not to imagine what you could or "should" be doing in your life. Even today it's hard not to get frustrated with planning around a limited worker schedule, asking someone else to wait up for you, just so you can enjoy a Friday night and make it to bed by the end of it. When it comes to the point where that's figured out, the "cool" bars are often the least accessible. My least favourite time of year is the Winter, because I essentially turn into a hermit due to the weather.

One time, when my sister and I were repeating the conversation I often fell into when down, she said she hoped I never was cured. At first I was insulted, and I didn't understand why she wanted such a thing for me. She said being cured would change me into someone unrecognizable from who I was, and today it makes more sense than it ever did. Having Cerebral Palsy has made me realize that burnouts, wheelies, and high speed, trump running, skipping, and jumping. The boy who said no, has a much more closed mind than the one who will say yes. The robot is just as cool as "Thriller". I have more brain cells and a heavier wallet than those who go out every weekend. When I do go out, any bar is "cool" as long as I'm among friends. In the winter, I have a deeper appreciation for movies, reading, and baking, and the friends who stop by to join in when they can. After so many years of thinking the able-bodied were lucky, I realize that I am the lucky one…


Karli

Working With What You're Given

This last Monday we talked about freak shows in Disability Studies class.  In the 1920s people who were considered abnormal were showcased for entertainment value.  There was Robert Wadlow, known as the tallest man on earth at 8 feet 11 inches; Chang and Eng Bunker who were male conjoined twins, and Daisy and Violet Hilton, the most famous female conjoined twins.  These people, because society would not accept them into the regular workforce and lifestyles, had no choice but to showcase themselves as freaks to make money.  These people had regular dreams just like you and me, to go to school, to get a job, to get married, and to raise a family.  Unfortunately for some, the world was not accommodating.  When Robert was going to school, the school system refused to make bigger desks; Daisy and Violet were refused marriage licenses, and Eng and Chang were really the only ones who ended up happy in spite of the freak show lifestyle.  They became farmers, and raised 21 children between them.

You would think that freak shows are a thing of the past, but we also learned about a modern day freak show called 999 Eyes.  At first, I wondered why these people would subject themselves to such a horrible concept of the past, but then I realized that they are only working with what they were given.  They come forward and not only showcase their talents (which include singing, dancing, juggling and much more) in spite of having things like dwarfism, amputations, and body deformations.  The only thing they are trying to accomplish, is to pray and to the forefront the disabilities and illnesses that classify them as "freaks".  In their efforts, they educate the audience, and slowly silence the many whispers and stares that come along with the abnormal and unknown.  They take the ammunition that could very well be used against them, and in turn show the world that they are comfortable with themselves and to educate and thwart ignorance.  I ended up relating to them really well, because I hope to thwart ignorance with my writing and the stories I tell. I also found that I have I a knack for comedy, and I can’t wait to add that to my current pile of ammo! Questions always trump ignorance!

 

Karli

The "Problem" That''s Not Going Anywhere

On Monday, we covered Mental Institutions in Disability Studies class. We talked about in the early 1900s and even earlier, there were places where people with disabilities and illnesses people couldn't understand or deal with were slumped together. These places were known as "Asylums for Idiots". The most populated location was in Orillia, and there was even one here in London Ontario. Every parents of disabled or ill children, world be convinced that if they were placed in these asylums, they would be rehabilitated and no longer a problem to society The caretakers would  delegate them into intelligence groups like Idiots, and Insane.  The residents were subjected to religious practices under the pretense that they would result in positive changes.  The government reports would indicate that the conditioners in which the residents were living were top-notch, but they were overpopulated, and the activities that supposedly were part of the "healing" process were producing nothing but blank stares. I realize that in the past people were less educated, and their  intentions were good, but the system was very flawed. My teacher ended the lecture by saying how far we've come, and that those attrocities have ceased to exist... I beg to differ!

They come in a different form! People aee much more educated in illnesses and disabilities than in earlier centuries, but not everybody involved in the fields puts it to good use. I have, for thr most part, a good set of workers. However, there are some that you can instantly tell are in the job for the wrong reasons. The most common being that the job is easy... WRONG! The job is so far from easy, that if you better quit while you'e ahead!  It's unfortunate, because these people usually have good intentions, but then they get  scared by the most essential needs like using the bathroom and taking showers. This often results in uncleanliness and infection, which can lead to worse.Some people take the job forgetting that it is self directed care. No matter how many times you tell them that a task is done one way, they'll do it how they see fit. I know not every helper or caretaker is like that, and top of the hat to those ones; but this is nearly 2013, we live emong society because we are a part of it. We are not an easy job, we are not a problem, and we are NOT going anywhere!


Karli

Lessons Learned & Lessons Taught

It seems like every year, the Education System is jeopardized in one way or another.  The latest decision to halt extracurricular activities leaves me reeling, even as I sit safely (for now) at Western. Extracurricular activities played a big part in my early years of school, and even still in my current school life. Some of my first friends were made at before and after school programs, I remember hoping that my mom was late so I stayed long enough for snack time or homework help. I was too busy enjoying the program to notice that someone had to be up at 5 to have the place open for 7, or stay late until every kid was home. As i look back now I am very thankful. My ALL time favourite activity was the MUSIC program! I took part in choirs and musicals for many years, until highschool (and fear of the boy in band I liked, hearing me sing) killed my will. To this day that is one of my biggest regrets, because I missed the chance to be taught by an amazing woman, Angela Southern. I could tell you that despite not a single moment spent in her music room, the magic she works with music still inspires me today! I believe that   that these experiences should not be threatened, and I salute those who provide them!

Now I’m going to talk of my experiences more generally. I can remember several strikes/ threats of them. The first I recall was in 97, the strike actually did happen. I didn’t mind so much because my teacher WAS actually lazy and not supportive of my disability. After a while though, my mom’s attempts at teaching became rather sad and empty. The second I can remember was grade 8. While everybody was worried about how the pending strike would affect the Wonderland trip, I was worried for my favourite teacher Bill Panopoulos, who had quite seriously earlier that day, given a lecture to the class on how “THE WORLD WILL NOT SPOOOOOOON FEEEEEEEEEEEEEEED YOOOOOOUUUUU!” Though I will always laugh at its extra stressed delivery, it’s a lecture I won’t soon forget. I have a SUPER soft spot for EA’s. They make sure kids get all the extra help they NEED! I can tell you I learned more in a 20 minute bathroom break with them than ANY teacher could EVER teach! They were my safety nets, helped me grow, learn, deal with heartbreak, death and loss, saw me laugh, cry, triumph, and fail... So when EA’s strike, it’s a direct blow... When the system is jeopardized, the learning opportunities may seem squashed, but you can never squash the student teacher relationship! I’ll never forget the pride I felt when I gave Dave Semple, the man who sparked my love for English, a black and white still of his prized motorcycle. I went about as red as my hair as he hung it up, and it’s STILL there! I won’t forget Linda Harvey-Rioux who sparked my creativity through technology; or how Judy Carter spent a class and a half trying to help mw grasp poetry and was the first one I went to when I FINALLY got the ramp we needed. I never expected that today, I would be having tea and cookies with my grade 6 teacher, and she would always be there when I needed an ear, or someone to share ideas with. Whatever happens, I hope it is settled soon, and thank you for the lessons I was meant to learn, and those I never expected to...

 

 

Karli

Ain't no Love like King's Love!

I haven't written here in a while, so I guess I better start up again...

School is back in session, and I'm sure I'll have a lot to say in this year.  However, let me use this post to explain the most amazing, yet exhausting week that was Orientation Week.  At first, I was really nervous, because my Sophs made such an impact on me last year; and I wanted to do the same for the incoming frosh.  I had no need to worry though, because I was working with a great team, and I have never seen such a friendly and talented group of frosh.  Though the mornings were early, and the nights were late, I would definitely do it again.  The days were filled with cheering, dancing, chatting., playing games, and eating Nutella, which became my new favorite food spread.  The cheering came loudest from King's, and thanks to my friend Shaidon Woods,, and the energy demonstrated by the Sophs and  frosh alike, King’s was able to take home the Spirit Award. I really enjoyed the whole week, I had 2 all-time favourite moments.  The first was Shinerama Day, because I take charity very seriously, and it was heartwarming to know that so many people were united for a good cause. My second favourite part was the King’s talent showcase. I was able to debut my “sit down” comedy routine, and turn a basic hobby into laughter. What I was most impressed with, was the froshes’ wonderful talents, If the talents and personalities I’ve seen are any indication, I’d say that the future of King’s is bright!

Home

 

Is

 

Wherever

 

I'm

 

With

 

YOU!

Karli

Going for Gold!!!

I never used to follow theOlympics very closely, because I never really liked sports.  It wasn't because I found them to be boring,it was because I couldn't really relate to the athletes.  This year, I am really enjoying the Olympics,because I started to realize that even though the dream is not my own, they arefighting for something they believe in. Just as I am fighting to achieve a Masters in journalism, and in turnchange the face of journalism, they are fighting to leave their mark on a sportthey love.  I find all the stories to bevery inspiring, and even if I'm not into the sport initially, when it's down tothe wire and Canada is close to clinching a metal, I'm glued to the TV.  If I'm getting this excited about the"normal" Olympics, then I can't wait for my reaction to theParalympics.  When I was growing up, theParalympics was unheard of.  We've come along way, and both the Olympics and Paralympics inspire me to attack my dreamsand hopes with the vigor of an Olympian. I can't wait to get started on my journalism journey, and as long as Ienlighten at least someone with my writings, I will consider that a gold.

Karli

Summer Adventures

This past weekend was filled with so many amazing things.  First off, I went to Rock the Park 9 at Harris Park.  I was most excited to see Slash, and believe me I wasn't disappointed.  His sound was distinct and beyond impressive; the crowd was pumped and it was an experience I won't soon forget.  I was also really impressed by Gavin Rossdale of Bush, who came up to the wheelchair seating and performed a song with us.  Very seldom do you get that treatment from a rock star, and for that, I thought he was a class act.  As much as I would have liked for Slash to do the same, I'm glad he didn't... because I would have the most likely died of shock.  The best part of the night, was having my friend Madison to hang out with, and enjoy the music.

The rest of the weekend was filled with helping my friend Jess with some retail therapy.  I got to indulge in my favourite lunch, which is New York Fries.  There is something so fun about retail therapy with a friend, because they can give you honest opinions about what looks good on you, and why you should or should not purchase.  On Sunday, we did it all again, except Jess introduced me to Shwarmmas.  Until now, I had never tried them... and now I know what my life was missing!  I can't even describe how good they are, and if you haven't tried them I suggest you do!  If there is one thing I learned about this weekend, nothing is better than random summer adventures, and nothing is better than having good friends to share them with.

Karli

The Girl with the Dragon Software

For school assignments and essays, I use a speech to text program called Dragon Naturally Speaking.  Normally, it works quite well, and when I know what I'm going to say I can fit 500 words in under an hour.  The only time it doesn't work, is when I am sick or under stress.  This is because it changes the consistency of your vocal cords.  Sometimes, I make three or more different voice files to deal with the consistency changes.  Another issue unique to summer, is the extra noise created by air conditioners and fans.  I find it unbelievably inconvenient, because on a sweltering hot day, if I wish to write I have to turn my air conditioner off.  I experienced a problem the other day, where matter what I did, the microphone would not pick up my sound.  It was quite annoying as I was trying to finish an assignment that was merely 500 words.  Instead of taking me under an hour, it took me three hours to finish, as I only manually type 6 words per minute.  I won't attribute all the problems I face with Dragon to the program alone; sometimes it is my fault because I run over the headphone cords when I go to take a break from work.  I've lost so many pairs of headphones that way that I probably can't even count on one hand.  Other times I struggle because I'm laughing hysterically at something the computer thought I said.  For example, I can say something like: "I need to go to the washroom", and it will register that I said something like: "I had tea with George Washington".  Despite its flaws, Dragon is my a lifesaver, and I would actually recommend it to anyone that was looking to save some time in the essay writing department.

Karli

50 Shades...

I just recently finished the 50 Shades of Grey trilogy after my friends swore up and down that I should read it.  They said it had crazy sexual content, and that was not a lie.  I won't spoil the book for those who have yet to read it, but I will provide a brief insight into the storyline.  The story is about a young woman who meets, and falls in love with a rich business type.  What she doesn't realize is that this man practices BDSM.  Essentially it includes "kinky" sexual acts, and one partner is dominant over the other.  To be honest, the whole prospect is not my cup of the tea, but I understand why people do it.  I suppose it serves as a stress reliever.  From my understanding of the practice, it is most often a businessman like a CEO that relinquishes his control to a woman or a partner.  I was really disappointed with the way the book presented the concept, because it was the female character that had to relinquish her power to the already powerful CEO.  I would have enjoyed the book much more if the roles had been reversed.  We have spent our entire existence in a world dominated by the male species, and just when you think we're making progress, a book like 50 Shades of Grey can potentially halt the progress by presenting the idea of being a submissive woman who allows rich men to wait on her hand and foot.  The older generation of readers may not be fooled, but there is a much younger and more naïve group of readers that may get the wrong ideas.  And trust me, if they think of Snooki as someone they can model after, there is a very good chance they might.  I did enjoy the book, in that it gave me a new perspective, and opened my eyes to an idea that I've never heard before.  However, it is nearly the year 2013, and it's time to give women, both real and in novel form more power.  My verdict for 50 Shades of Grey = 50 Shades of Primitive Thinking.




Karli

Fighting the Good Fight!

For as long as I can remember, I have been trying to help people understand the world of disabilities.  I have done everything from politely explaining disabilities to young children (with white face embarrassed parents not far behind them), to writing strongly worded letters aimed at the press.  It started in high school at Parkside Collegiate Institute.  It was close to prom, and prom was held in the Parkside court.  The court was a tiny area within the school that contained a fountain.  People in wheelchairs could not get down to the court because there were steps all around it.  I was puzzled as to what I would do when it came to prom, and a few of my friends said that they normally rented a ramp for prom time.  I wondered why there wasn't a ramp all the time, because there was the possibility that someone would need or want to get down to the court on an occasion other than prom.  At first I wondered "why do I have to do this?", and then I realized that if I didn't nobody else would.  So I went to talk to my principal, and he seemed understanding, but my instincts told me that I might need ammunition if I wanted this to be taken seriously.  I began to write a letter to a local St. Thomas news paper, hoping that if the school board couldn't help me then somebody else could.  Upon presenting the letter to my principal, I was unsure of what to expect, but I knew that I had set fire to the issue, and something so simple could not go unanswered.  Three days later I had the ramp I requested, and I was as happy as if I had just won the lottery.  It was a proud moment for me and I couldn't believe that I had achieved something that the Educational Assistants had been fighting for as long as four years for in three short days.  I vowed that I would continue to fight for simple things such as this to benefit those with disabilities, and to bring enlightenment to those who didn't understand our needs or lifestyle.

I continued to do so at Fanshawe College.  I had articles prepared to publish within the college newspaper, however I was unable to publish them in time as my school life was sometimes overwhelming.  But I knew I could fight in other ways.  I tackled each class with determination and vigor, coming to class with not only a will to learn, but a well to teach everyone from the already strong believers to the skeptics.  Thankfully, I had a team of counselors and my notetaker Stephen Pritchard to help me through my struggles.  By the end of my college career, I had the skeptics unafraid to clear the hallways of any foot traffic, and walk me to class, to ensure that I made it on time if the hallways were busy.  I had the strong believers saying that they never wanted to see my face at Fanshawe College again, and that's partially how I ended up where I am today at King's University College.

I have just finished my first year at Kings University College, and it is here where I find that the help and the resources provided have been most overwhelming.  There is a great number of people I can turn to.  I went to the student body president of King's, Dave Ennett, to discuss some disability issues around King's campus.  I was delighted to find that he was very open to getting to know my perspective of King's; and with the help of my friend Dominique McKee, my issues were noted.  Tomorrow, we'll take a walk (or drive) around the Kings campus with disability counselors, and provide input for their yearly accessibility assessment.  I am very much looking forward to this opportunity, and I'm grateful that such a system is in place.  It makes me feel as though there is hope, and one day inaccessibility will be unheard of, accessibility will become like second nature to the world around us.

Sometimes even though I'm working hard, I feel as though I am alone in the issues I face.  Even though the proper resources have been provided, and any precautions have been taken, you cannot always control or prevent the obvious setbacks of a disability.  These setbacks can include the inaccessibility or lack of equipment in a bathroom, to figuring out how you will be transported from point A to point B. There is one group of people that I never imagined would be so helpful when the unexpected twists of a disability arise.  The group of people I am referring to is the King's Soph Team.  We have only started to get to know each other recently.  When these unexpected issues arose, the team was ready and willing to lend a hand, even though they've only known me for a short period of time.  I commend the Head Soph for taking care of the issues of transportation. Finally I think my fellow Sophs, for rising to the occasion and rising out of their comfort zones and assisting me when I need them most. It’s nice to know that in my future battles I will be fighting alongside a great group of friends and colleagues.


Karli

21 Years & Counting

I apologize for my lack of blogging! School has a way of taking over everything you enjoy...

I believe I've mentioned here that my journey up the ladder of life has been full of struggles for the simplest of things (as I'm sure everyone's has in their own way). Sometimes even when you've accomplished a lot, it's hard to feel satisfied with yourself. In the back of your mind there's always something saying "you should have done more by now". On Friday April 13th, I turned 21. Leading up to my birthday, I was feeling rather selfconcious about the things I haven't accomplished yet; like getting a job or being in a relationship. As I write this now, I feel these worries are quite petty and brought on by society's expectations. It's unfortunate that these expectations can weigh so heavily on someone... especially me.

I guess it proves I'm more human (and less of a cyborg) than I thought!

I almost feel ashamed at how easy it is to brush aside what I've been through and hope for what society calls "more". I HAVE accomplished a lot, most of which goes unmarked within societal guidelines. I was originally supposed to be a "braindead vegetable" according to the oh so lovely specialists of the 1990s. What a long way I have come from that early diagnosis. Today I am the first person in my ENTIRE family to be in University! In regards to this achievement, what society says, should take the backseat... but somehow it sneaks to the front! I do not share this with you to brag or get pity. I share this as a reminder to myself and others, that when you feel like you should be doing more, remember what you HAVE done and be proud of it!

I know I am young and there's still plenty of time to accomplish things. So, right now I'll get through school and enjoy my time with friends. I would like to take this time to thank them for the endless support, meeting such wonderful people was an accomplishment in itself. As long as I have them, it doesn't matter when or if I accomplish what society says. Thanks for making my journey easier. As the years go by, I will always be proud of my experience at King's University College @ Western -- on wheels to boot!


Karli

Me & my friend Dominque McKee - President of Student Issues @ King's UWO

Well, Good Morning to You Too!

My days are usually off to a good start, because my helpers know me well. They know that quiet, quick, and efficient is the best way to be until I'm fully awake. If this is properly executed, I'm usually awake within a half hour of their arrival.

However, this was not the case this morning, as my company has continued to contract out other agencies due to being short staffed. The agency that's hired primarily deal with the elderly, and with some, it shows. I have one worker that is so ridiculously sarcastic, and while sarcasm is usually my middle name, I can't handle it at 6:30AM!

I (luckily) have the ability to direct my own care, and on top of the unwanted sarcasm, this lady can't seem to wrap her head around the idea! "The sling attaches on the first loop" "Well it works better on the second I think" Key phrase: you think! I have been hoisted up in slings for over 11 years now, and a piece of paper proving completion of a program, does not make you wiser than I in the subject!

So why am I sharing this? Because how I'm woken up every morning greatly impacts my day, mood, my will to learn! I'm pretty sure most of you would tell someone like the person
mentioned above where to go and how to get there... But there's not much you can do when help is limited.

Karli

The Weather is Fine! … Not!

I just wish the weather would make up its mind. When it can't, like now… good luck Karli! What happens to me when the weather is bad, or indecision? I get pressure headaches, which vary in annoyance from a fly buzzing in your ear, to a brick weighing down your head. From what I've heard, I'm not alone there, but it's rather inconvenient when you're down and out from school because of the weather!

Another thing; when the weather is wacky, I'm like a broken thermometer! What is decent for some, is often freezing for me. Why? Limited circulation. I wear sweater shawls, but I never seem to win because it's just right outside, and then boiling inside (and I'm not so good at putting things on and off myself). I find it funny too, that when I ask what it's like outside, people instantly say the roads are bad/fine. That would be great if I actually used them. Sidewalks are my road, and during the winter London's sidewalk upkeep = death trap! I know it's almost spring, but people seem to forget about Canadian winters…

The weather is not fine, yet…

Karli

HERStory... or Lack Thereof

Today's class left me with a sort of emptiness that's hard to explain... We were talking about Virginia Wolf, and how in the 16th century it was highly frowned upon for women to do anything except get married. If you were a female poet in this time period, you were thought to have an unhappy life, using writing to fill a void created by a patriarcal society. To write as a woman was deemed crazy, and if they did, they would hide their writtings and do it in secret. If they hoped to be published they would have to use male pen names or publish anonymously.

They used a Freudian idea to explain how poetry evolved. Essentially the popular poet of the time could be viewed as the "father figure" that all the up and coming poets were jealous of (as Freud said little boys were envious of the father's relationship with the mother). The poets managed the feelings by taking the current writing style and incorporating their own little twist. However, this borrowed theory did not hold for the female poets that existed, few though they were. It was said that those poets had been inspired to write by their mothers, and the examples they set, because they had no female writers to look up to or learn from. It was unsettling to me, because if they were around today, they would have had ample female writers to look up to. They wouldn't have to hide behind a pen name!

As this was being discussed, I found myself pondering who I looked up to , not just as an aspiring journalist/writer, but also as a person with a disability. I thought of people like Terry Fox, Jesse Davidson, Stephen Hawking, and Rick Hansen instantly. Hawking was the only one to fit umder both circumstances. I was shocked when my mind could not come up with any women with disabilities. I was deeply ashamed to think that I would have to Google "inspiring disabled women" to find one from the past, or even presnt...

The history of women has been so poorly documented that it makes me quite litterally sick! The accounts that ARE recorded are tainted by years upon YEARS of patriachy. The history of the disabled women, is tainted with missunderstanding and most likely misdiagnosis... How many women voices went unheard because to write was frowned upon? How many brillant minds were snuffed because disabilities and illnesses weren't understood? Now, it's FACINATING that women are finally filling male occupations, they can finally do equal levels of work! NO! we can't finally do it; we were able to do it all along, but just never given a fair chance... Maybe there has been progression, but to look at MY present and still be able to see clear as day, issues that existed in the 1600s, tells me that there is still much to be done. I'm sure that goes for every woman, disabled or not... but after this class, I know I want to play a role in discovering the unknown. I want to make sure no story goes untold... and it looks like I've got some research to do!`


It's been HIStory for too long... Time to make some HERStoy!

Karli

WoMan's Best Friend

This week my blogs will be a little less school related, due to being on break.

For as long as long as I can remember, dogs have played an important role in my life. If you think about it, they never judge you and don't care where you came from or who you are, just as long as you return the love they give to you! Dogs have been a source of comfort for me in everthing from recovering from surgery to just being the listening ear when no one else is around to hear. To me, they are very theraputic, and there are none more loyal. So it was fitting that my break started with my friend Jess brought her  new puppy Osie for a litte visit. Everytime my friends bring over their dogs, it's like a vacation from stress. The fluffy golden furball helped everything be forgotten, with just a cuddle on my lap.

I love dogs so much, that ever since childhood I've fantasized about having a service dog to help me. It always fascinated me that dogs could be trained to be even more helpful than they are in the most basic sense. It would save me so much trouble to have one; opening doors, picking up fallen items, getting help I was stuck, and possibly helping with transfers (though I don't know if that would work because I have difficultly weight bearing). I have always thought it would be beneficial to have one in the school setting; however the training is very time consuming, and it's important to keep as consistent as possible to ensure they maintain the commands and procedures taught. As my own routine as a university student is far from consistent, and the dogs cost upwards of $15,000, I would rather wait until things settle down before I look into one. For now, I'm content with visits from friends and their pets, but I look forward to the day when I can finally have my very own WoMan's best friend

A Much Needed Break!

I'm sure I speak for many when I say I 'm looking forward to the break! I can't wait for a week of endless choices. I've been so stressed with so many litttle things like healing from my fall and keeping on top of assignments. I've been trying to re-book an exam that was supposed to be on the Friday after my fall; it's difucult 'cause I usually have to book it 2 weeks ahead to make sure I've a quiet place to work. No such luck with re-booking before the break, but I shall return refreshed and ready to write next week! It will be nice not to be bothered by the little things, like whether the buttons around the school will work on a given day, or whether your bus will be on time on top of the books and many other things. Imagine having to plan a bus pickup three days in advance, setting a time and them being as early or late as they please (so it quite often seems). It is not impossible to be be forgotten either; which hasn't happened to me at King's yet,but the paranoia is still present.I cant just hop on the next one within ten minutes later. If you miss a bus/ are forgotten, you could be waiting an hour +


This coming week will be a rejuvenation period, filled with friends, fun, and pj days (and maybe some reading for once?) I'm looking forward to writing my blog at decent hours of the day, instead of getting "brilliant ideas" while lying in bed at 11pm, and perhaps pay more attention to the autocorrect feature on my iPhone, since I've noticed my late night brilliance leaves behind silly mistakes! I hope everyone enjoys the well deserved break, and spends time rejuvenating, because ALL students need a break sooner or later…

Karli

10 Year Old Tricks

On Thursday I had an unexpected accident. I was cleaning my couch off so my friend Amber could sit comfortably when she came to visit. So I won't in my room to put away laundry that was on the couch, and as I was coming out of my room my chair got stuck in push mode! I though my workers would clue in that there was trouble, but no such luck!

I called for help for a long time until my voice was gone. In retrospect it was pointless because the walls are pretty much soundproof. So I spent another while convincing myself to slide out of my chair using my childhood tricks.. This was a huge risk for me because my 21 year old body is significantly less active and my mind much less brave than my 10 year old self once was. Once I collected myself and was sure I wouldn't throw up all my innards, I wormed my way to a phone jack and pulled the phone off my bed. I finally got help, and I am
Lucky to only have gotten a few scratches and a bruised tailbone; which I hope is quick to mend.

I'm glad I remembered my ten year old tricks, because not only did they save me, but they showed me I still have a sliver of strength that I thought was forever gone…

Karli

Shortcuts

Today was an interesting start. I seemed to baffle my classmates standing outside the class who were whining that they never bough the Children's Lit books and never knew what was going on. So I pipped up and said that I listened to audiobooks to save me time and money.

I have come to know that not reading books can be a deadly choice in the long run, but I also understand that if you juggle 5 courses, you have to learn some shortcuts to keep your sanity. Audiobooks have been my hero in children's lit because we cover a book per week. Some people skim chapters or readings, which is better than not reading at all! I don't know what I'd do if I didn't take shortcuts!

I'd rather take shortcuts than cut books out entirely,

Karli

"Brain Tired"

Today I was bombarded with advice on what I should do to enhance my chances of getting into journalism. I was advised to take two majors, and attempt to push for honours as well. So I reconfirmed my original English major, and added a major in Women's Studies.

Coming to that decision was actually quite confusing though. I felt like I was dealing with a car salesperson, except they were trying to up sell my degree to a specialization which forces you into 9 certain courses and doesn't leave any room for electives. It was lucky enough I was convinced to take on another major! The only reason I'm giving honours a go is because if my grades don't make the cut, I can be transferred into a basic major.

Once that was over, I had 2 hours of poetry analysis. Today's class was relatively interesting, in the sense that I didn't feel drowsy after the first hour . But I have to admit, after the earlier information overload I wasn't all there. It was one of those days you wish everybody would speak simple words.

It's much easier to be simply tired than "brain tired",

Karli

Everything but Football

I don't think I've ever had more informative conversations than the ones I had last night. I felt like I was in the VIP seating, because I was surrounded by a great group of people. I met Adam Fearnall a USC presidential candidate, who even when he had every right to enjoy the game, took the time to help me understand his platform. Facebook has been bombarding us with countless videos and posters, and it was nice of Adam to help me make sense of it all.

I have been really nervous since I applied for the Soph team, but after talking with Adam I won't feel doomed if I don't make it (though I still have everything crossed that I do). I don't have to be among the council or the Soph team to make a difference. I just have to be myself, and keep fighting for what I believe in. So that means I will keep fighting for disability awareness and rights like I have for many years already. I gather from this weekend that I will have many friends willing to help me do so…

I really did have fun last night discussing everything BUT football,

Karli

Cookies + Craziness

Today I spent time with my friends Dominique and Terralyn! It was much needed, and we talked about school and everything under the sun. Sometimes you don't realize how much you need time with friends until you make time for them. Life gets so busy and stressful that you forget you're not alone, It was nice to forget about my troubles for a while, and I'm so greatful that my friends are so willing to listen and help me when I need it!

We made Angel cookies and let the spring-like sunshine and air come though my balcony door, which also refreshed me. I'm really appreciative that pretty much winter never came! There's nothing like baking cookies with friends and good weather to lift your spirits, and there's no combination like cookies and craziness!

Another great day with two great friends!

Karli

The Awkward Moment When…

Today was just a plain weird day, and a few awkward things went down. I started my day off in the library stapling an assignment together. I got into the first library door, but then the second is supposedly automatic, (it lies) and then I foolishly wait for someone to help and I look like an idiot! You know, usually I rarely get bothered by the little things, but these silly little things are very simple and easy to fix, and it seems like no one will take notice…

So then I get to class, and the prof is 15 minutes late. The class understands be cause we know his mom is very sick with cancer. Well, the socially awkward person in the class (there's always one right?) pipes up and asks why he's late… and the whole room was dead quiet! I literally cringed, the prof shouldn't have to explain his troubles to anyone… awkward person or not!

I hate feeling awkward and I seem to be a magnet to it…

Karli

The Lone Ranger

I live on my own in a small apartment. Until today I never really considered myself to be alone cause I had my kitty Aaron. Well, I had to bring him back to the shelter today because as a student I wasn't home enough for his liking.

He was from the shelter, and had some deep rooted separation anxiety issues that I couldn't fix. I felt so bad, almost like a failed parent because I had to give him up. I know he will find a home soon, but I wish I could do more. I guess I did the best I could for him by giving him a chance for a better life with a another family. Maybe one day, when my life slows down i'll give it another try with a kitten.

Gotta get used to being the lone ranger Again,

Karli

Happy! Happy! Happy!!!

So today I was soooo excited because the Soph apps came out! They are pretty much the ticket to making sure the newbies have a blast. I had such a good experience with my sophs that I hope to pay it forward!

Today was just an all around good day. We discussed the novel Jungle Book, which was interesting because there is quite a difference compared to Disney's rendition (more raw animal nature)! We watched clips from the first Harry Potter and discussed its critique on society today, as well as how it promoted reading in a world that reads way less than the past! I shocked my prof with the response that I'd gladly run down people who thought I was the odd duck in society! Happiness comes and goes, and I'm so thankful to King's for being the source of mine this year!

Don't worry be happy now,

Karli

What's in a Name?

I've been seeing all over that Western is changing its name to Western University. Of course all over the web, there has been mixed reviews ranging from OMG how could they!? to Big deal! I have to say, I agree with the latter.

As long as you're happy where you are, and doing what you want to do, a name means nothing. What does matter is the people you meet, the experiences you share, and the mark you leave behind..I have to say I'm quite pleased with my accomplishments, experiences, and friends I've met so far! Even if it was called the University of Platypus, I would still proud to go here.

Karli

Lazy Days

I woke up this morning feeling like I didn't want to get out of bed.  I tried listening to some of my favourite music, in an attempt to pump myself up.  No use.  I tried to work on my Soph Creative and was bored 10 seconds later. I’m surprised I’m writing this right now. You know, it sucks when your drive is equal to the weather outside. I just feel like eating half of my house, and not feeling guilty about it.  I went to school for two hours today, and the only thing I felt motivated to do was buy brownies from the King's bake sale.  That was about the only good thing that happened today.

On days that I feel unmotivated, my favourite remedies are shows like Dr. Phil, and the Jeremy Kyle show.  I feel almost embarrassed to admit it, but it's true.  Whenever I watch the Dr. Phil show, I look at the people on there, and I think to myself that my issues could be a lot worse than being buried in books.  When those TV shows don't cut it, I resort to my favourite foods like cookies, spaghetti , and fries. Whatever happens, I just keep Rollin'

Here's hoping tomorrow proves more productive,

Karli

Forever Young

Yesterday I went to celebrate my friend Dominique's 20th birthday at Winks. Of course she had already done a fair amount of pre-drinking beforehand so by the time I got there, she was already pretty far gone.  I didn't mind at all, because that's to be expected on your 20th birthday, and it was a free source of entertainment.  I laughed when she wrapped her arms around me, and started wailing...

I DON'T WAAAAANNNNNAAAAAA BEEEEEEEEEEE 20!

It was a very funny sight to see, but it reminded me of my own fear of growing up.  Responsibility seems to jump on you when you least expect it, and sooner or later you have no choice but to grow into adulthood.  So far, on my journey I have had many ups and downs, and I assume there will be many more.  However, if I continue to meet people like my friends at King's, adulthood will only get better.  There may be increased responsibilities, and increased stress levels but I know I'm not alone.  No matter how old I get, and no matter how busy life makes me, a part of my heart will always remember the memories I am making today.

                 

Forever Young,

Karli

Inspiration?

Last night I stayed at King's to hear Luca Lazylegz Patuelli speak and perform a breakdancing show.  I found his show was amazing.  He told us about all the obstacles he had faced on the way to becoming a professional breakdancer. He was born with Arthrogryposis, which affects the muscles and bones in his legs, making them tight and hard to move.  He has had over 16 correctional surgeries, and was told by doctors that he would be confined to a wheelchair.  Yet, yesterday there he stood with crutches and the ability to take a few steps without them.  It was very inspiring for me to meet someone with a disability, who had reached their dream and even surpassed it.

One of my friends told me that I was just as inspiring as him.  Though I was flattered, I can honestly say that I've never thought myself to be inspiring at all.  Yes, I have struggled through a lot to get to King's and yes I am the first person in my family to go to university, but I've never stopped and said that those were amazing things.  I just continued because it felt like the right thing to do.  Isn't it funny how you can so easily find something inspiring in others, but are so hesitant to see the same in yourself?

Maybe I should give myself more credit, but it's not as easy as it seems...

Karli

I Swear the Janitors Must Hate Me

Winter is the worst time for people in wheelchairs. For me, I'm cooped up inside a lot and have to rely on para transit if I wanna get around. Not only does it do a number on my mood,but also poor Chuck (read last post). Chuck eats snow, dirt, and salt very much to my disliking, as my house never stays spotless for more than 5 seconds. I feel even worse for the King's janitors, because no matter how much they clean I always instantaneously destroy their neat job. I've actually stayed at the school long enough before, to witness them bring out the giant mop machine, and like I said destroy their job. At previous schools I've been I always felt pride in the destruction Chuck caused, because THOSE janitors were downright pricks who had it coming! The janitors here are nice. The people that need work are the elevator maintenance guys, but that's another story…

Bringing destruction to a public place near you,

Karli

Fixing "Chuck Norris"

Who else can say that they had to miss an entire day of school for wheelchair repairs?  That's how I spent my day today.  It was an uneventful day because I had no choice but to sit and wait for the repair guy.  I was unsure if he was even coming because the secretary said that the schedule was full.  To be honest, getting your wheelchair fixed is much like taking your car in.  As I mentioned above, I had to wait the majority of the day for him to decide whether he could fit me in, and then when he got here it was an abundance of awkward conversation; such as "oh, hold on let me put on my Boston Strangler gloves, but don't worry I only do that on the weekends."  It's funny because the repair guy seemed to think he was seriously a comedian.  It's like they think this conversation will make the experience goes smoother, when in fact they're making it worse.  Then he felt the need to walk me through the process and told me everything that he was doing.  I actually appreciate that part, because I learn how to properly describe the issue the next time my chair breaks; but of course he continued making "funny" jabs at how I was so destructive to my wheelchair.  After I got through all the awkward conversation, he starts to fix my chair (which I call Chuck Norris because it's awesome) and he finishes up. Then he pets my cat for 5 minutes, and is on his way! The one issue I've had with Chuck, is that it seems they took many shortcuts in the manufacturing process. For example, using super glue to hold the buttons in place and being lazy when making sure screws were on tight. I thought no one was supposed to "fuck with Chuck," but someone clearly did!

This message was Chuck Norris approved,

Karli

Craving Adventure

So many of my friends are currently on great adventures, and I can't help but feel jealous.  With one friend in Sweden, and many other friends planning tropical getaways for reading week, I have a strong longing for my own adventure.  I feel like I've turned into a zombie.  Wake up, go to school, come home, eat, do homework, shower, sleep, and repeat.  My weekends aren’t much better, alternating between parents houses when I don't have a school obligation or in an insane amount of work.  I do hang out with friends as well, but even the activities I do with them seem repetitive, they come over, play video games, watching movies, talk, and eat food.  I love school, my friends, and my family, but I'm in serious need of something new.

It doesn't have to be a tropical getaway, because logistically that's hard to plan for.  A tropical getaway would be easier if I went with my parents, but I’d love to go somewhere with friends, and friends alone.  That's why I was thinking of a weekend of sightseeing in places like Ottawa or New York. The only problem with that is, I always feel bad when I ask my friends for help. London IS the City of Opportunity, if you’re looking to turn into a lifeless zombie. I need to be more, see more, DO more... I gotta get outta here!

Craving Adventure,

Karli

Scare Tactics

Have you ever had that ONE teacher who just scared the shit out of you? Making you feel like nothing you do is right? Until just recently, that was me. Yesterday I had 2 hours of English 1020, which is basically an introduction, mixed with (much to my displeasure) a crap-load of poetry analysis.  The professor was not happy with the class average of 66%, so she started the class with a lecture.  She essentially said that if our marks continued like this we would not make it in the real world.  She even went as far as to say that with our standards right now, we didn't deserve degrees.  After the incident I mentioned in my last post, this made me laugh.  Compared to last Monday, this professor's criticism was as nice as getting roses.



I didn't take it as an insult, because everything she said was true.  Until recently, I would have said that the professor was out to get us and blame it on something like being sick.  The truth is, we do get sick and we do have bad days.  However, we can no longer blame poor performance on sickness among other things.  The funny thing is that the professor kept telling us that she didn't care what happened to us.  However, I think deep down, in some twisted way she did.  Maybe it wasn't because she cares about us all individually, but good grades look good on her.  Secretly, I think she's hoping that we all pass; so when it comes to fourth year she will have people to invite to her Christmas parties.  Students need teachers, and teachers need students.  The scare tactics are a teacher's way of secretly expressing that they care.  In my opinion, I prefer them more than being told I can't have a notetaker.  Instead of bitching about how rude and unfair her judgment was, I choose to rise to the challenge and blow her away.



Chuck Norris, I mean...





Karli

Even Teachers Could Stand to be Educated

Ok so after too long of a hiatus, let's get this thing rollin' again...

Second semester has started, and I'm happy to say I've found my groove gradewise! I'm finally pulling off high 70s, which is good because I was nervous that I really wasn't cut out for university. However, last week brought an experience I wasn't expecting to face at UWO, a place which boasts excellence in education standards. I was more than ready to believe that, until Monday when I started my new Writing half-course. At first my only problem was the size of the classroom because my wheelchair made me feel like Andre the Giant trapped in a Genie lamp, but I found a way to fit. I even liked the teacher, with a prim and proper British accent and quite a hefty teaching resume, apparently having taught in several parts of the world. Then it came to in class assessment time where we had to write to see where our skills were. So I asked the professor if I could either take it home and hand it in next class, or go with my notetaker Jess to a quiet room and type it.  The teacher's response was that if she helped me type it up, it wouldn't be my own work.  I was very confused by this because every other professor I have understands that a notetaker is like an extension of my pen and my ideas.  When I need help writing, she puts down nothing but what I tell her to and to even think of cheating would be consequential to the both of us.  So I tried explaining just that to the professor, and she wouldn't hear any of it.  In essence she told me that having a notetaker was a form of cheating and not permitted in her classroom.

What a lot of people don't understand is that people with disabilities fight to receive an education from the very beginning.  Back in the 90s my parents had to fight with countless principals to ensure that I was even placed in a "regular" class.  As time went on I had to face it on my own.  I could tell when teachers wanted nothing to do with me, because I'd be secluded from the rest.  If I had questions they would be casualty brushed aside.  Not all my experiences with teachers have been negative, but the reason I bring this up is because last Monday it felt like after years of fighting and trying to prove myself, I felt like I had went backwards.  I'll admit that there are some who use our disability as a cheat or a free pass, but that's their choice, and their choice alone.  I am a student at the University of Western Ontario, I have worked from the ground up to get where I am today, and I don't intend to fall back down.  We are in the year 2012, and we should be well past the point of assumption and fear of the unknown.  If you are teaching it in the year 2012 without an open heart, and an open mind then perhaps you should go back to school.  No matter what your teaching credentials are, if you cannot see past a disability, you should not be teaching... especially in a place like Western..

We are all able, open your mind

Karli